Dr. Hugh Tildesley |
This
past week I have felt better, the legs are behaving, I worked 3 ½ days at the
office, and spirits remain strong. I am again cautiously trying to increase my
walking without paying the price of recurring swelling. Today I managed 2.25
miles non-stop.
Leg length support stocking in disaray |
The swelling has dissipated so much that my support hose falls down.
The feeling is similar to your socks migrating to your toes when wearing Billy
boots.
I
think I’m pregnant ;I have specific craves as to what I want to eat and drink,
and these change almost on a daily basis. My liquid intake has graduated from
tonic water, soda water and has settled to an “ Arnold Palmer”. This is a
combination of lemon aid and ice tea. Deborah was horrified at the sugar
content of the commercially available concoction and found the ingredients to
eliminate this issue and we have a homemade formula. It is indiscernible from
the commercial product (naturally 10% of the cost). By mid morning I am usually
convinced as to what we should have for dinner, we buy fresh ingredients and it
has worked out perfectly. I always thought we would shop and eat in such a
manner, just that we would be living abroad while doing so. Like a pregnant
lady I pick at my food and often feel full before I should. I do not have a due
date.
Linked
with eating is my weight. Now that the fluid from my right leg has mobilized my
weight decreased 3 pounds, this is huge motivation to stay on the eating
program. We are looking into various stimulants in this regard.
Every
week there are positives:
Hamish
returned home for a 3-week stay on Thursday. I am on a need to know basis
regarding his career development but remain confident that he is well
positioned for the next stage. Fortunately his visa status is secure for the
next year and this means less hassles as he travels to and fro LA. The US has
so many immigration rules and policies. In Hamish’s case, since he has
completed a degree (Masters in Fine Arts (screenwriting)), he is given a work
visa for 1 year to work in a job related to his training. After 1 year he
submits letters of support for an extended work visa, the clock started on
graduation day.
Anniversary Photo |
The last 6 weeks our back yard has been a construction zone. As many of you know I thrive on continuity and the disruption affected me. The project had been planned since November and was executed beautifully. Deborah spent hours consulting with Diane Bridges (wife of Greg, a longstanding TWA member), and the crew was attentive to all details of the plan. The result is spectacular. The foliage calming and with our flawless weather a great place to hang out. These photos do it some justice.
The putting green did not make it through the first set of drawings. This could change with Deborah's next trip out of town
Father’s Day will be a different celebration. I have enough stuff and so the kids were asked to bring a wrapped gift to themselves, chosen by them, given to them. My message to them was that the best gift for me was to give.
Hamish
will do a roast beef on the spit, he has a newly invented marinade, I will do
my Yorkshire pudding, and the ladies will prepare the veggies. I am much more
comfortable eating at home as if forever reason my appetite strays it is no big
deal.
I
met with Dr. Renaud’s replacement on Friday; my blood work is in order to
proceed with round 2 of chemo on Monday. My list of questions were dealt with
efficiently and we had a very good rapport. I continue to try to streamline my visits,
and again lobbied for phone or Internet follow-up.
Interestingly
blood work is designed to pick up dangerously low levels of white cells, so
when is the best time to test for this? The fact is that serum ½ lives of these
drugs have incredibly large variations, so unless you estimate an individual
patient’s excretion and physiologic effect it is all a guess, thus being too
demanding on the timing of blood testing without this data is a bit of a
stretch. Like many things in medicine we tend to do what has worked in the
past.
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