Saturday 25 July 2015

Test Results: A Mixed Bag



Dr. Hugh Tildesley
So how am I doing? Weight hit 159 pounds, my goal is 160, so up nicely and on the right track. Albumin increased by 10%, another positive sign. The CT compared to baseline is a mixed bag. The primary pancreatic tumour has not changed since April. The multiple small tumours in the liver have dissipated significantly; the more problematic larger tumour in the liver has grown slightly. This is a mixed response; the good news is how I feel and my weight gain.
 I still await the complete genetic testing to see if the treatment can be more focused, in the meantime we will persevere with the current poisons.

July 24 was Donovan’s 31st birthday, a relatively small gathering of family and friends, with a great collection of reminiscing and good humour. He is still working out swimming 3-4 times per week but not with the intensity of Paralympic preparation. Like many 30 year olds central weight is creeping up (he comes by it honestly), one of his presents was a spin class and hooking up with his old trainer Yves. I am confident this should help to limit his personal clothing costs.

I am using “looking forward to stuff” as a motivator. Donovan’s birthday was one such event, Hamish’s in late August another, Deborah’s and mine in September, a Family celebration at Thanksgiving and of course Catherine’s birthday in early November.

Another decision regards the Canadian Seniors Golf Tournament in Toronto next month. There is no reason for me not to go (except my golf game), so Deb and I will combine the tournament with touching base with the Kent clan and my brother Dave. Again, something to look forward to.

The more immediate “ next “ event is the expected arrival of the Tesla in a few days. I am busy learning as much as I can as to how operate this computerized gem. My adventures may make up a complete future blog!

Rhea when in better health
The animals have sensed household changes. Unfortunately mother cat, Rhea passed away last month. She was 13 and died of natural causes with Catherine comforting her through her final hours. Avril the daughter cat has been more talkative since Rhea’s departure and she has taken her mother’s place as Ginn’s soul mate. I am rather insensitive but I did not detect any grieving by Avril over the loss of her mother.

Innocent: No panties in sight
Ginn has regressed with these added household stresses. Soon after Rhea’s death she systematically went on panty raids. This of course does not affect me directly (I have resisted the Jenner model of dressing), Deborah has been quite inconvenienced, and Catherine is now receiving weekly shipments of replacement underwear. Fortunately no Vet bills for Ginn and more careful storage of clothing has essentially eliminated the problem.
New best friends: Ginn and Avril







This week’s Rant: For a change Translink.

The latest: the Board (unelected, and seemingly rudderless) put an advert in for a new CEO. Starting salary $360 K, parking at 2K per year, health benefits, and of course guaranteed severance package. This group of yahoos continues to flaunt the public’s wishes for fiscal responsibility and accountability. They do so at their peril.

Some recommendations on summer reading:

“How Not to be Wrong, The power of mathematical thinking “, by Jordan Ellenberg.

Do not be scared by the “mathematical”, it is basically logic. With the upcoming Federal election the book should serve as a tool to cut through the drivel and cacophony that emanates from the talking heads on TV.

For one of my early 2016 Oscar picks for best documentary, Amy.

For one of my early 2016 Oscar picks for best actor, Ian McKellen, in Mr. Holmes.

Until next week......




Saturday 18 July 2015

A Better week



Dr. Hugh Tildesley

 On Monday I will start my fourth round of chemo. Round 2 was not enjoyable, I had 10 days of bloating, loss of appetite, which culminated in about a 5-pound weight loss. Not good. I think they gave me the wrong stuff!

This time I sailed through. A few modifications included prolonging my steroids, and being obsessive about my diet. The result was that there were very few symptoms and I regained my weight. My appetite returned and my energy level was fine. Blood work this morning was stable, although for some reason the albumin was not done, this was added and hopefully has risen. Dr. Renouf and Dr. Wong outlined some alternate therapeutic options based on preliminary genetic results; these options will be predicated by my CT scan to be done July 24. These genetic results were to have been ready about a month ago; at least some progress has been made.

We agreed that if I was responding, we would continue with the Folfirinox for the short run.

There is always humour at the Cancer Agency. They still have not figured out how to get results to Dr. Adam White or me. On Monday I will call the head of the lab and suggest my tests are not eligible for MSP funding if they do not report the results. Stay tuned.

Today’s appointment at 0900 started as usual, the nurse called my name. My last name is difficult for some, but Hugh? So far she has called me:

Heaguah
Uggha
Weeyou

The simplified “You”, seems beyond her. Fortunately today I was the only one in the waiting room.

I continue to play golf on Wednesday’s and Sundays. The men’s night tradition is good for my spirits my scores not so. On the golf course things are fine, I’m using a cart and whereas breaking 80 was a goal, breaking 90 is the new reality. Off the course things are dangerous. Men like to be physical. Touching is important. My fellow members have a propensity for coming up behind me and rubbing my shoulders. Nice gesture except sometimes they get my port a cath. I now instinctively cover my right upper chest when greeted from behind, and raise my right fist for those coming straight at me.


This strategy is working; repeat offenders may get the Ali punch to the temple. (Trivia buffs the so called “anchor Punch”, knocking out Sonny Liston in 1965)

Ali vs Liston May 1965
Mini Rant: You may recall my commentary on the recently failed plebiscite for a Greater Vancouver Transit Plan. (Blog July 4).

Translink got a public spanking losing by a margin of 2:1.No publicly elected official has had the guts to take responsibility of this fiasco or to explain the secret use of $7 million to try to sway the public. Now the fall out. The interim CEO, decided to fire 2 Vice Presidents. This was done by that unrelenting plethoric windbag Doug Allen, who will step down August 2, to be replaced by yet another interim CEO!

These guys skipped management 101: first hire the new CEO and let him/her select the management team.

Chappa's Tunnel
On a lighter note we need to think outside the box to get subways built. These Mexican guys can dig about a mile a month without any visible disruption to the surface. There may be some work permit challenges however.


Until the next time……….Cheers